Trust and Terminal

navigating life with a terminal illness

Menu
  • About Me
  • Blog
    • Heart
    • Mind
    • Body
    • Soul
  • Me & My Illness
  • Contact
Menu

About Me

This page only exists because I’m terrible at WordPress and figuring out this theme

A Dutch/Indonesian Kiwi girl living in beautiful Brisbane, Australia

Zodiac: Cancer (accuracy – 90%. I don’t like children. Or Aries)

Chinese Zodiac: Water Pig (accuracy – 30%. I’m definitely not social and I didn’t lose the race because I stopped at the free buffet)

Myers Briggs: INFJ-T (accuracy – 95% ohhh, so, so accurate)

Enneagram: 4w5

Favourite Animal: Snow-Leopard and Tiger

Favourite Music: Metalcore/Melodic Death

Coffee: Dirty Chai

About Me

Welcome to my page! Im a 40-something Dutch-Indonesian Kiwi girl living in Brisbane, Australia. This is my story living with a degenerative, life limiting illness.

Follow Me

chronicillsofmon

Living life with VCP Disease/IBMPFD/MSP1/ALS-14/MND 💗

Instagram post 18006830816903375 Instagram post 18006830816903375
Using BodPod and Quark Respirometer for the MND En Using BodPod and Quark Respirometer for the MND Energy Metabolism and Lipid Storage in MND Study at UQ. In part, investigating whether energy metabolism is altered in MND and whether these changes are linked to disease severity and progression.
Thanks to Eli, Holly, Mel, Shu and Dee! 
#mnd #als #mndresearch #bodpod  #sohotrightnow
Needle Muscle biopsy University of Queensland Dec' Needle Muscle biopsy University of Queensland Dec' 2025. Full procedure here: https://youtu.be/t6evtqgHWFM?si=LKWeNFFs-K4axbK5 (sensitive content) 
#musclebiopsy #universityofqueensland #mnd #mndresearch
Follow on Instagram

Popular Posts

:)

Thank-you!

For spending time on my page. I hope you find solace and solidarity no matter what your own personal journey entails. Please feel free to add, follow or get in touch via the below

  • Twitter
  • Facebook
  • YouTube
  • Instagram

Recent Posts

Newsletter

Etiam placerat velit vitae dui blandit sollicitudin. Vestibulum tincidunt sed dolor sit amet volutpat. Nullam egestas sem at mollis sodales

©2026 Trust and Terminal | Theme by SuperbThemes