Trust and Terminal

navigating life with a terminal illness

Menu
  • About Me
  • Blog
    • Heart
    • Mind
    • Body
    • Soul
  • Me & My Illness
  • Contact
Menu

Category: Mind

Disguised blessings

Posted on May 28, 2023 by Monika

I’ve never been maternal. I’ve never been the teenage girl dreaming of her white picket fence and 2.5 children. I remember a boyfriend asking me “well, do you see yourself marrying me? Do you see us having kids?” . I replied that I didn’t know, but I didn’t know if I saw that with anyone….

Read more

Mediocrity..is it really so bad?

Posted on May 28, 2023May 28, 2023 by Monika

You get to thinking about an old school friend, and on a whim look them up online. In a few years, they’ve travelled the world, got the “most gorgeous, kindest partner” and just bought their first house while you’re still in your little home town working an unfulfilling 08:30-5 with only your buzzing refrigerator to…

Read more

About Me

Welcome to my page! Im a 40-something Dutch-Indonesian Kiwi girl living in Brisbane, Australia. This is my story living with a degenerative, life limiting illness.

Follow Me

chronicillsofmon

Living life with VCP Disease/IBMPFD/MSP1/ALS-14/MND 💗

Instagram post 18006830816903375 Instagram post 18006830816903375
Using BodPod and Quark Respirometer for the MND En Using BodPod and Quark Respirometer for the MND Energy Metabolism and Lipid Storage in MND Study at UQ. In part, investigating whether energy metabolism is altered in MND and whether these changes are linked to disease severity and progression.
Thanks to Eli, Holly, Mel, Shu and Dee! 
#mnd #als #mndresearch #bodpod  #sohotrightnow
Needle Muscle biopsy University of Queensland Dec' Needle Muscle biopsy University of Queensland Dec' 2025. Full procedure here: https://youtu.be/t6evtqgHWFM?si=LKWeNFFs-K4axbK5 (sensitive content) 
#musclebiopsy #universityofqueensland #mnd #mndresearch
Follow on Instagram

Popular Posts

:)

Thank-you!

For spending time on my page. I hope you find solace and solidarity no matter what your own personal journey entails. Please feel free to add, follow or get in touch via the below

  • Twitter
  • Facebook
  • YouTube
  • Instagram

Recent Posts

Newsletter

Etiam placerat velit vitae dui blandit sollicitudin. Vestibulum tincidunt sed dolor sit amet volutpat. Nullam egestas sem at mollis sodales

©2026 Trust and Terminal | Theme by SuperbThemes