Trust and Terminal

navigating life with a terminal illness

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About Me

Welcome to my page! Im a 40-something Dutch-Indonesian Kiwi girl living in Brisbane, Australia. This is my story living with a degenerative, life limiting illness.

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chronicillsofmon

Living life with VCP Disease/IBMPFD/MSP1/ALS-14/MND 💗

Instagram post 18006830816903375

Instagram post 18006830816903375

Using BodPod and Quark Respirometer for the MND En

Using BodPod and Quark Respirometer for the MND Energy Metabolism and Lipid Storage in MND Study at UQ. In part, investigating whether energy metabolism is altered in MND and whether these changes are linked to disease severity and progression.
Thanks to Eli, Holly, Mel, Shu and Dee!
#mnd #als #mndresearch #bodpod #sohotrightnow

Needle Muscle biopsy University of Queensland Dec'

Needle Muscle biopsy University of Queensland Dec' 2025. Full procedure here: https://youtu.be/t6evtqgHWFM?si=LKWeNFFs-K4axbK5 (sensitive content)
#musclebiopsy #universityofqueensland #mnd #mndresearch

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For spending time on my page. I hope you find solace and solidarity no matter what your own personal journey entails. Please feel free to add, follow or get in touch via the below

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