Trust and Terminal

navigating life with a terminal illness

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Category: Blog

TPD Insurance

Posted on August 26, 2025August 26, 2025 by Monika

In 2023 I began familiarising myself with Total and Permanent Disability (TPD) insurance. In Australia, most Superannuation companies will have TPD insurance built into their cover. It is there to help cover costs of living if one becomes permanently unable to work due to injury or illness. The ‘total’ part is a little more loose…

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Silver Linings

Posted on July 21, 2025July 22, 2025 by Monika

I never thought an additional diagnosis of Motor Neuron Disease could be a good thing, but wow. Since I was diagnosed in October 2024, I got in touch with Motor Neuron Disease Queensland. I provided them my diagnosis letter, and discovered that they are based (so have their Headquarters) in the same suburb as me,…

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About Me

Welcome to my page! Im a 40-something Dutch-Indonesian Kiwi girl living in Brisbane, Australia. This is my story living with a degenerative, life limiting illness.

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chronicillsofmon

Living life with VCP Disease/IBMPFD/MSP1/ALS-14/MND 💗

Instagram post 18006830816903375 Instagram post 18006830816903375
Using BodPod and Quark Respirometer for the MND En Using BodPod and Quark Respirometer for the MND Energy Metabolism and Lipid Storage in MND Study at UQ. In part, investigating whether energy metabolism is altered in MND and whether these changes are linked to disease severity and progression.
Thanks to Eli, Holly, Mel, Shu and Dee! 
#mnd #als #mndresearch #bodpod  #sohotrightnow
Needle Muscle biopsy University of Queensland Dec' Needle Muscle biopsy University of Queensland Dec' 2025. Full procedure here: https://youtu.be/t6evtqgHWFM?si=LKWeNFFs-K4axbK5 (sensitive content) 
#musclebiopsy #universityofqueensland #mnd #mndresearch
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